The Haematology Society of Bangladesh organised a discussion titled Optimising Haemophilia Management in Bangladesh: Addressing the Societal Burden Challenges to commemorate World Haemophilia Day in Dhaka on Thursday.
Directorate General of Health Services director general Professor Dr Md Abu Jafor, Ministry of Health and Family Welfare additional secretary Dr Shah Md Helal Uddin and Haematology Society of Bangladesh president Professor Amin Lutful Kabir, among others, joined the discussion, said a press release.
The discussion addressed issues related to the management and treatment of haemophilia in the country.
Discussants said that the Haematology Society of Bangladesh, recognising the importance of accurate data collection and patient management, advocated for the establishment of a central patient registry.
鈥楾his registry, potentially managed by the Management Information System at the DGHS, is essential for monitoring and managing haemophilia patients across the country. A centralised database will provide comprehensive data to inform healthcare policies and improve patient outcomes.鈥�
They also said about the finalisation of the National Haemophilia Guideline by the Non-Communicable Disease Centre at the DGHS.
The Haematology Society is urging the swift completion and implementation of these guidelines to ensure standardised protocols for the diagnosis, treatment, and management of haemophilia. Standardised guidelines are vital to providing consistent and high-quality care across various healthcare settings in both urban and rural areas, they said.
The society is calling for increased support for haemophilia patients through the provision of essential treatments such as Factor VIII and Emicizumab. These treatments are crucial for managing haemophilia effectively and improving patients鈥� quality of life, the discussants added.